Quianu’s Story…..

Today, Quianu Robinson is a 3-year-old toddler who is very energetic, hilarious, outgoing, friendly, and loves to learn new things. Although he currently has a few medical issues (catches illnesses very easily, and has gastric issues), he is luckily not as sick as he was just after his first birthday.

Quianu turned 1-year-old on January 7, 2010.  This was supposed to be a very happy time, however he began to get illnesses back to back about a week prior to his birthday.  He had pneumonia, RSV, and then on January 28th, we received the diagnosis of Kawasaki Disease.

Kawasaki Disease is a disease that inflames the vasculatory system.  If left untreated or treated beyond the 10 day window, it can cause severe damage to the heart and other parts of the body and/or cause death.  Quianu was VERY sick and was admitted to Hasbro Children’s Hospital for IVIG treatment and high dose aspirin therapy (for 2 months to prevent aneurysms because his coronary arteries were dilated).

Intravenous Immunoglobulin (IVIG) is a blood product administered intravenously (IV).  It contains the pooled, polyvalent, IgG (immunoglobulin (antibody) G) extracted from the plasma of over one thousand (1,000) blood donors.

The effects of IVIG last between 2 weeks to 3 months.   One treatment is usually enough to treat Kawasaki Disease.  However, in Quianu’s case, he had IVIG resistant Kawasaki Disease and needed another dose of IVIG on February 8, 2010. So, in essence, over 2,000 blood donors saved my son’s life and I am forever grateful to all of them.

I developed the annual Quianu Robinson Blood Drive and Fundraiser to raise Kawasaki Disease Awareness in 2010. Quianu also has his own page on Facebook which gives updates on his progress and information on Kawasaki Disease (https://www.facebook.com/QuianusJourneyWithKD).  Like my other children,   I wish for Quianu to be happy, healthy and excel in life.  I also hope that as Quianu gets older he will use his voice to reach out to others and continue to spread Awareness of Kawasaki Disease.

This story was shared with us from Jennifer, Quianu’s mother. For more information on Kawasaki Disease, you can join Jennifer and Quianu on their facebook page and follow Quianu’s happy life!  We hope you will join their blood drive and raise your voices in awareness of this disease.